Crowd shot at Retina 2019

Public Engagement Day 2020

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Date(s) - 07/11/2020
10:00 am - 1:45 pm


Join us on Saturday 7 November for our first ever virtual Public Engagement Day.

The event will be hosted on the video conferencing platform Zoom.

To register for your free place, please use our online form (opens in new tab).

If you have any questions about Public Engagement Day, please email or call 01 678 9004.


Please note this agenda is subject to change. As the event is taking place online this year, the timetable cannot accommodate condition specific breakout sessions. Instead, we will hold condition specific webinars early in the new year.

Welcome and introduction

10.15am: Opening Address
Kevin Whelan, CEO of Fighting Blindness

10.25am: Fighting Blindness ambassador address

10.35am: Welcome Message
Ian McKinley, International rugby player

Session 1

10:45am: Staying Connected: Our Support Response throughout COVID-19
Peter O’Toole, Head of Support at Fighting Blindness

11:10am: “Charles Bonnet Syndrome (CBS) – the Orphan Condition”
Judith Potts, Esme’s Umbrella Group, UK

11:20am: Capturing the Prevalence and Experiences of CBS in Ireland
Claire McSweeny, Unversity College Dublin

11:25am: “Beyond your genes – your genetic inheritance need not define your life”
Claudette Medefindt, President of Retina South Africa

11.50am: Managing your eye health in a Covid-19 world
David Keegan, Clinical Ophthalmologist

12:10pm: Break (20 mins)

Session 2

12:30pm: “Latest News on Emerging Therapies for Retinal Diseases”
Ben Shaberman, Foundation Fighting Blindness, USA

13:15pm: Reimbursement of sight saving medicines in Ireland
Dr Laura Brady, Head of Research at Fighting Blindness

13:25pm: Paddy Byrne Empowerment Award
Dr Audrey Derveloy, Novartis Ireland
Christina Fasser, Former President of Retina International


13.40pm: Closing address
Kevin Whelan, CEO of Fighting Blindness