The V.I.P. Network and Patient Involvement (PPI)

Are you interested in research and advocacy? 

Join the Fighting Blindness V.I.P. (Visually Impaired Person’s) network!

From the start of Fighting Blindness, our work was not just about research. It was about answering questions people losing sight had. What caused the condition and was there any treatment? People with sight loss conditions were always at the heart of what we do.

Fighting Blindness has set up the V.I.P. Network. Our pioneering idea that the public and patients need to not only feed into but be a part of research is a basic requirement for all research projects called P.P.I. (Public and Patient Involvement).

 

What is Patient Involvement (PPI)?

Patient (and public) involvement (PPI) describes how people living with medical conditions (patients) can become involved in research and advocacy activities. By working alongside scientists, clinicians, industry and/or regulators, the patient and their input can play an important role in contributing to and/or guiding the pathway to therapy development.

Are you a V.I.P?

If you have sight loss and would like to get a little more involved in research and advocacy the V.I.P. network is for you. We ask for more information like your age and eye condition so we can share opportunities to feed into specific projects relevant to you.

 How do I sign up?

  • Register your interest in joining the V.I.P. network using the form below.
  • Membership is open to people and families living with sight loss.

Learn more about the V.I.P. network and PPI in our two explainer videos below:

Video description: Declan Meenagh (Advocacy Officer) explains the Fighting Blindness V.I.P. Network and role of P.P.I.

 

Video description: Dr. Shannon Lee (Research Officer) explains the Fighting Blindness V.I.P. Network and role of P.P.I.

 

If you have any questions contact the Fighting Blindness Research Department at research@fightingblindness.ie  or call +353 1 6789 004.

 

Register your interest in joining the network by completing this form: