Head of Advocacy (maternity cover)

August 27, 2019

We’re hiring maternity cover for our Head of Advocacy. The application deadline has been extended to Monday, 9 September. 

Period: 9 Months fixed term
Salary: Competitive
Hours: Part time (21 hours per week)
Starting date: September 2019
Holidays: 24 days per annum pro rata
Reporting to: Chief Executive

About Fighting Blindness

We are a patient-led charity with a vision to cure blindness, support people living with sight loss and empower patients. We are the only Irish charity funding research into treatments for sight loss. To date, we have invested over €18 million in more than 100 research and clinical  projects.

We provide professional counselling and therapeutic services for individuals and families living with vision impairment and blindness. We advocate for equity of access to timely and appropriate diagnosis, healthcare, therapies and support services and, through education and information provision, we work to empower the 247,000 children and adults in Ireland who are blind or visually impaired.

Over the past 35 years, we have grown from a small support group for families affected by retinitis pigmentosa (RP) to a nationally recognised brand.

Job purpose

The role is responsible for implementing the organisation’s advocacy strategy; this will involve developing and delivering advocacy campaigns as well as building and maintaining relationships with key stakeholders such as elected representatives, Government departments, statutory bodies, and NGOs. The ideal candidate will have in-depth experience of advocacy strategy and campaign management in the Irish healthcare context. They will have a keen interest in the charity sector and will want to use their skills to make a real difference and influence change.

Role and responsibilities

  • Work with multi-stakeholder groups in the areas of rare diseases and vision at a national and international level, including on project teams for specific relevant projects
  • Represent Fighting Blindness at national and international level on relevant boards and committees, conferences and events as appropriate
  • Work with all relevant stakeholders in medicines regulations and reimbursement process to ensure access to therapies for people affected by vision loss
  • Point of contact for patient and public queries relating to services, supports, policy, access and other relevant matters
  • Manage and further develop VIP Network for Public and Patient Involvement (PPI)
  • Support people to participate in Public and Patient Involvement (PPI) activities
  • Management and development of Fighting Blindness Membership Programme
  • Act as a point of contact for internal and external enquiries on specific policy areas
  • Respond to consultations on behalf of the organisation in line with strategic objectives
  • Regular contributions to all communications channels – website, newsletters and social media

Qualifications and skills

  • Relevant 3rd level qualification in a related field essential
  • Minimum three years’ relevant experience
  • Experience in advocacy and lobbying essential
  • Experience in the voluntary sector an advantage but not essential
  • Knowledge of public health policy and policy-making processes
  • Knowledge of medicines regulation and reimbursement processes
  • Ability to work on own initiative, consult where appropriate and work within a team
  • Ability to work under pressure, manage competing priorities and meet deadlines
  • Excellent written and verbal communication skills, and presentation skills.
  • Ability to think creatively, problem solve and work under pressure to a high standard
  • Self-motivated with a high level of organisational ability, accuracy and attention to detail

Position based at Fighting Blindness office, 7 Ely Place, Dublin 2, with occasional national and European travel as required. Interested candidates should submit a copy of their curriculum vitae and cover letter to Anna Moran at anna.moran@fightingblindness.ie no later than 4pm on Monday, September 9. Fighting Blindness is an equal opportunities employer.