Join us for our first condition-specific webinar

April 12, 2021

Retina 2020 logo

Our series of condition-specific webinars will kick off on Wednesday 5 May. This first session will focus on:

These educational sessions are an extension of our Retina 2020 program and would normally, pre Covid-19, have taken place in person at Public Engagement Day.

If you would like to submit a question for one of our speakers please do so before the event. You can email your question to or call 01 678 9004. This will help us with time management on the day.

All of the sessions in the series will be recorded and will be available after the event.


Date: Wednesday 5 May
Time: 5pm – 6.30pm

Register here in advance for this webinar (opens in new tab)

After registering, you will receive a confirmation email containing information about joining the webinar.


5pm: Welcome
Kevin Whelan, CEO, Fighting Blindness

5:10pm: Overview of genetics and inheritance patterns
Jackie Turner, Genetic Counsellor

5:20pm: Research and clinical trials update
Ben Shaberman, Senior Director of Scientific Outreach & Community Engagement, Foundation Fighting Blindness

5:45pm: Clinical update
David Keegan, Clinical Ophthalmologist

6:10pm: Capturing the Prevalence and Experiences of Charles Bonnet Syndrome in Ireland
Alison Reynolds, University College Dublin

6:20pm: Closing questions and answers

6:30pm: End

This session is kindly sponsored by NovartisProQR and Roche.