Earlier this year, Fighting Blindness and patient organisations from Europe, UK and North America joined ProQR to participate in an advisory board and inform the development of a clinical trial study for a novel RNA therapy that has the potential to treat individuals affected by Usher syndrome type 2…
Footballing Legend Ronnie Whelan Launches Fighting Blindness Guide to Age-Related Macular Degeneration (AMD) Charity Recommends Everyone Over 50 Have a Check-up for AMD Every Two Years With over 7,000 people newly-diagnosed with Age-related Macular Degeneration, or AMD, each year1, footballing legend Ronnie Whelan today launched Fighting Blindness’ new Guide to AMD…
Fighting Blindness, the national vision research charity, welcomes today’s announcement that the European Commission has approved the gene therapy LUXTURNA (voretigene neparvovec-rzyl). LUXTURNA has been approved for treatment of children and adults with vision loss caused by mutations in both copies of the RPE65 gene and who have…
Fighting Blindness is delighted to announce the commencement of a new research project by Dr Sarah Doyle, Trinity College Dublin. This 3-year project is co-funded by Fighting Blindness and the Health Research Board (HRB) under the MRCG-HRB co-funding scheme. This study is one of 14 projects funded under the current…
The IPPOSI Patient Education Programme delivers training for patients, carers and advocates living in the Republic of Ireland on health research and innovation. This includes education modules on clinical trials, medicines regulatory affairs and health technology assessment. The programme is designed to enable and empower more patients and patient advocates…
Are you a scientist with an interest in retinal research? Fighting Blindness is facilitating the opportunity for a student to participate in a retinal imaging training programme next Summer in the US. Read here for more details.
For too long patients and families affected by rare conditions across Europe have had to struggle to access a correct diagnosis, specialist knowledge, and appropriate treatment. European Reference Networks (ERNs) offer a unique opportunity to transform care and treatment for people living with a rare disease, but only if they…
Salary: €30,000 (€15,000 pro rata) Hours: Full Time Starting date: November 2018 Holidays: 24 days (12 pro rata) Fighting Blindness seeks to employ a full time Fundraising Executive to join their team. This is a six month contract. Objectives The fundraising executive will report directly to the Fundraising Manager…
Patrick shares his story of sight loss. He will be doing the Dublin Marathon and would really appreciate your support, you can donate here. Granny, when are you going to die? This was the question I asked my Granny when I was 5 years old because I just…
Need to Talk: Could you be an Emotional Support Vision Champion? Sight loss can be devastating and its emotional impact profound for the individual going through this life-changing event and for their family and friends. As an Emotional Support Vision Champion, you can reduce the emotional impact of…