Fighting Blindness is delighted to announce the commencement of a new research project by Dr Sarah Doyle, Trinity College Dublin. This 3-year project is co-funded by Fighting Blindness and the Health Research Board (HRB) under the MRCG-HRB co-funding scheme. This study is one of 14 projects funded under the current…
The IPPOSI Patient Education Programme delivers training for patients, carers and advocates living in the Republic of Ireland on health research and innovation. This includes education modules on clinical trials, medicines regulatory affairs and health technology assessment. The programme is designed to enable and empower more patients and patient advocates…
Are you a scientist with an interest in retinal research? Fighting Blindness is facilitating the opportunity for a student to participate in a retinal imaging training programme next Summer in the US. Read here for more details.
For too long patients and families affected by rare conditions across Europe have had to struggle to access a correct diagnosis, specialist knowledge, and appropriate treatment. European Reference Networks (ERNs) offer a unique opportunity to transform care and treatment for people living with a rare disease, but only if they…
Salary: €30,000 (€15,000 pro rata) Hours: Full Time Starting date: November 2018 Holidays: 24 days (12 pro rata) Fighting Blindness seeks to employ a full time Fundraising Executive to join their team. This is a six month contract. Objectives The fundraising executive will report directly to the Fundraising Manager…
Patrick shares his story of sight loss. He will be doing the Dublin Marathon and would really appreciate your support, you can donate here. Granny, when are you going to die? This was the question I asked my Granny when I was 5 years old because I just…
Need to Talk: Could you be an Emotional Support Vision Champion? Sight loss can be devastating and its emotional impact profound for the individual going through this life-changing event and for their family and friends. As an Emotional Support Vision Champion, you can reduce the emotional impact of…
The European Medicines Agency (EMA) Committee for Medicinal Products for Human Use (CHMP) have recommended approval of Luxturna for the treatment of inherited retinal dystrophy caused by mutations in the RPE65 gene. A final decision will be made by the European Commission within the next two months. The positive opinion…
As part of the Budget 2019 process Fighting Blindness made a submission to the Departments of Health and Finance. The submission highlights key priority areas based on information from recently published reports and a national survey of our members in 2017. A summary of our key asks are outlined below.
Thank you for supporting the Pin Badge Appeal! A big thank you to everyone who has taken part in our recent Pin-Badge Appeal to help fund a new retinal camera for the neonatal unit at the National Maternity Hospital. Thank you for delivering hope to premature babies and their families…