The winner of Best Production at the Dublin Fringe Festival Awards 2018 is coming to the Abbey Theatre as part of The Young Curators Festival, ahead of a national tour.
Dundalk local Eric Beggs is organising his last ever Cooley Mountain Trek in aid of Irish charity Fighting Blindness. Eric is one of the charity’s star fundraisers and has supported the cause since 2017. To date Eric has raised over €137,000 and he’s hoping that a successful trek in August…
Fighting Blindness is a dynamic organisation that prides itself on funding impactful and innovative research that has clear potential to result in diagnostic and therapeutic interventions for people living with sight loss. With an ever increasing ambition and putting those affected by sight loss at the heart of everything we…
The drug Idebenone (commercial name Raxone) has been approved for reimbursement for a subset of people living with Leber hereditary optic neuropathy (LHON). This means that the HSE will cover the cost of the drug for people with LHON who meet certain criteria, these are outlined below. One of…
Are you a parent or guardian of a child with an inherited retinal degeneration? We want to hear from you. Take part in a research survey and help us identify the real impact of these conditions on day to day lives. What is an IRD? Inherited retinal degenerations (IRDs),…
A beautiful piece of writing by Fighting Blindness volunteer Maeve Doyle who compares and contrasts her vision with a galaxy: “At every moment, I see stars. Faces are obscured by a thousand swirling galaxies; words are lost under the flashing colours of supernovas. Stars shoot across my vision at every…
Earlier this year, Fighting Blindness and patient organisations from Europe, UK and North America joined ProQR to participate in an advisory board and inform the development of a clinical trial study for a novel RNA therapy that has the potential to treat individuals affected by Usher syndrome type 2…