The European Medicines Agency (EMA) Committee for Medicinal Products for Human Use (CHMP) have recommended approval of Luxturna for the treatment of inherited retinal dystrophy caused by mutations in the RPE65 gene. A final decision will be made by the European Commission within the next two months. The positive opinion…
As part of the Budget 2019 process Fighting Blindness made a submission to the Departments of Health and Finance. The submission highlights key priority areas based on information from recently published reports and a national survey of our members in 2017. A summary of our key asks are outlined below.
Thank you for supporting the Pin Badge Appeal! A big thank you to everyone who has taken part in our recent Pin-Badge Appeal to help fund a new retinal camera for the neonatal unit at the National Maternity Hospital. Thank you for delivering hope to premature babies and their families…
Deirdre O’Kane launches AMD Awareness Week Deirdre jumps on board sightseeing bus tour, to raise awareness of Age Related Macular Degeneration Age Related Macular Degeneration (AMD) is the number one cause of sight loss in Ireland for those aged over 50[1] Novartis is offering free AMD eye…
The National Centre for Pharmacoeconomics (NCPE) today published its recommendation on reimbursement of the drug Idebenone (commercial name Raxone®) for the treatment of visual impairment in adolescent and adult patients with Leber Hereditary Optic Neuropathy (LHON). The NCPE report recommends that idebenone “not be considered for reimbursement unless cost effectiveness…
Link to Submission Document Introduction Need To Talk (NTT) is a cross border counselling, confidence building and peer support programme for socially isolated people with sight loss across Northern Ireland (NI), Ayrshire & Arran, part of Highlands & Islands in Western Scotland (WSc) and the Border Counties of the…
Thank you to everyone who attended the Fighting Blindness Annual General Meeting at the Radisson Blu Goldenlane. We were delighted to catch up with old friends and welcome new members as we shared our achievements and impact during 2017 and looked ahead to an exciting year ahead. As a patient-led…
Retina International are looking for volunteers who are receiving treatment for Wet AMD to participate in a focus group. The event will take place at the Radisson Blu Hotel in Dublin on Monday 23 April. If you would like to participate please contact Mary Roche, Advocacy Manager at Fighting Blindness on…