Dear members, supporters and friends,
Welcome to the autumn edition of our Visionaries newsletter. As I write this, the country is in Level 3 restrictions and we are very conscious of the challenges that it presents to you. Do not hesitate to contact us, as we will help in any way we can.
Faced with this uncertainty, we have made the decision to host our annual Retina conference online this year. Whilst we’re saddened to miss the opportunity to meet you all in person, we’re confident that we will deliver an engaging, innovative and – most importantly – safe virtual event.
On Public Engagement Day (Saturday 7 November) we’ll welcome a selection of fantastic speakers including international rugby star Ian McKinley, Judith Potts, Ben Shaberman and Claudette Medefindt.
Judith Potts, the founder of Esme’s Umbrella Group, will speak about Charles Bonnet Syndrome and her mission to raise awareness about the condition. This week we launched a survey to capture the prevalence and experiences of Charles Bonnet Syndrome in Ireland. If you’re living with a visual impairment, I encourage you to take the survey and be part of this important study.
Head to our website to read the full agenda and book your free ticket. I look forward to seeing you all there.
We are calling on the HSE to reimburse the life-changing gene therapy, Luxturna. We are disappointed with the announcement from the NCPE not to recommend funding for Luxturna. It is our utmost priority to challenge this decision on behalf of our community.
I’d like to take this opportunity to thank everyone who took part in or donated to our various fundraising initiatives over the past few months.
I’d also like to extend a special thanks to the Terry McCormack Memorial Cycle team who organised a virtual event this year and raised over €3,000 for the charity.
The outpouring of support and generosity – particularly during such a difficult time – is incredible. From the Fighting Blindness team and our board – thank you.
Chief Executive Officer