Welcome to the summer edition of the Visionaries newsletter. It’s my pleasure to introduce the newsletter and update you on our recent work and achievements.
Fighting Blindness is part of an international research consortium called IRD COUNTS. The project is carrying out research on the impact of living with an inherited retinal degeneration (IRD) in Ireland and the UK. Thank you to everyone who participated in this important research by completing the IRD COUNTS survey in recent months. Your contribution is invaluable.
The results of this project will inform other research and clinical trials in the future and will enable us to advocate for better supports and access to emerging therapies. The research findings will be presented at our Retina 2019 conference in November.
On that note, registration for the Retina 2019 Public Engagement day is now open. Join us on Saturday, November 16, for a day of research updates, practical workshops and special guest speakers.
On May 11, we held our AGM, where Emer Comber was awarded the Anne Byrne Memorial Award. The Anne Byrne Memorial Award is presented to a Fighting Blindness member who has demonstrated outstanding dedication to the organisation. Emer was celebrated for her energetic voluntary work on our support services’ Trip to Tipp.
Our Need to Talk project is going from strength to strength in the border counties. The Living with Sight Loss course in Monaghan was a huge success and we plan to roll out more throughout the year. You can read more about Need to Talk on page 9.
Finally, I’d like to thank all of our brilliant fundraisers, particularly Theapamex who raised over €16,000 for us by cycling across Ireland in May.
If you would like to get involved in raising money for Fighting Blindness why not take part in this year’s Vision Walk 2019? Full details on how to register are on page 11.
From all of us at Fighting Blindness, thank you for your ongoing support.
Kevin Whelan, Chief Executive Officer