Watch back our first condition-specific webinar which focused on:
- Retinitis pigmentosa (RP)
- Leber congenital amaurosis (LCA)
- Usher syndrome Choroideremia
- Rod-cone dystrophy
- Retinal dystrophy
These educational sessions are an extension of our Retina 2020 program and would normally, pre Covid-19, have taken place in person at Public Engagement Day.
Agenda
Welcome, Kevin Whelan, CEO, Fighting Blindness
5:15 Overview of genetics and inheritance patterns
Jackie Turner, Genetic Counsellor
12:31 Research and clinical trials update
Ben Shaberman, Senior Director of Scientific Outreach & Community Engagement, Foundation Fighting Blindness
40:05 Clinical update
David Keegan, Clinical Ophthalmologist
1:08:25 Capturing the Prevalence and Experiences of Charles Bonnet Syndrome in Ireland
Alison Reynolds, University College Dublin
This session is kindly sponsored by Novartis, ProQR and Roche.