Watch back: condition-specific webinar (one)

May 7, 2021

Watch back our first condition-specific webinar which focused on:

  • Retinitis pigmentosa (RP)
  • Leber congenital amaurosis (LCA)
  • Usher syndrome Choroideremia
  • Rod-cone dystrophy
  • Retinal dystrophy

These educational sessions are an extension of our Retina 2020 program and would normally, pre Covid-19, have taken place in person at Public Engagement Day.

Agenda

Welcome, Kevin Whelan, CEO, Fighting Blindness

5:15 Overview of genetics and inheritance patterns
Jackie Turner, Genetic Counsellor

12:31 Research and clinical trials update
Ben Shaberman, Senior Director of Scientific Outreach & Community Engagement, Foundation Fighting Blindness

40:05 Clinical update
David Keegan, Clinical Ophthalmologist

1:08:25 Capturing the Prevalence and Experiences of Charles Bonnet Syndrome in Ireland
Alison Reynolds, University College Dublin

This session is kindly sponsored by Novartis, ProQR and Roche.