Privacy Policy

Effective Date: 10/06/2025

Organisation: Fighting Blindness

Website: https://www.fightingblindness.ie

Contact: info@fightingblindness.ie

1. Who We Are

Fighting Blindness is an Irish patient-led charity working to find treatments and cures for sight loss. We are committed to protecting your personal data and respecting your privacy in accordance with the General Data Protection Regulation (GDPR) and the Data Protection Acts 1988–2018.

2. What Personal Data We Collect and Why

a. Event Participation and Campaigns

When you register for or participate in our events, campaigns, or fundraising activities, we may collect:
– Name, email address, phone number
– Postal address (if relevant for event materials)
– Emergency contact details (for in-person events)
– Accessibility or dietary requirements (if applicable)

This data is used to manage your participation, communicate event details, and ensure your safety and comfort.

b. Photography and Media at Events

We may take photographs or record video at our events for promotional, reporting, and fundraising purposes.
– Where practical, we will inform you in advance and provide the opportunity to opt out.
– For close-up or identifiable images, we will seek your explicit consent.
– Group shots in public or open event settings may be used under legitimate interest, in line with GDPR guidance.

If you wish to withdraw your image or have concerns, please contact us.

c. Email Communications and Unsubscribe Rights

When you subscribe to our emails or donate, you may receive updates on our work, events, and fundraising.
– Every email includes a clear unsubscribe link.
– You may also contact us at any time at info@fightingblindness.ie to update your contact preferences.
– We do not share your email data with third parties for marketing purposes.

d. Contact and Web Forms

If you contact us via forms on our website, we collect the information you provide (e.g. name, email, message content) to respond to your query or request.

e. Cookies

We use cookies to enhance your experience. You may opt-in to saving your name, email, and website in cookies for convenience when commenting. These cookies last for one year.

f. Embedded Content

Articles may include embedded content (e.g. videos, images) from other websites. These behave as if you visited the other site and may collect data as per their own privacy policies.

3. Legal Basis for Processing

We process your data under the following lawful bases:
– Consent – when you opt in to receive communications or register for events.
– Legitimate Interest – for activities such as donor engagement or event management, where your rights and freedoms are not overridden.
– Legal Obligation – where we are required to retain data for compliance or reporting.

4. How Long We Retain Your Data

– Comments and their metadata are retained indefinitely.
– Event and campaign data is retained for up to 3 years unless otherwise required for legal or reporting purposes.
– Contact form submissions are retained for up to 12 months.

5. Your Rights

Under GDPR, you have the right to:
– Access your personal data
– Correct inaccuracies
– Request deletion (where applicable)
– Object to or restrict processing
– Withdraw consent at any time
– Lodge a complaint with the Data Protection Commission (www.dataprotection.ie)

To exercise your rights, contact us at info@fightingblindness.ie.

6. Data Sharing and Transfers

We do not sell or rent your data. We may share it with trusted service providers (e.g. event platforms, email services) under strict data processing agreements. Data is not transferred outside the EU unless adequate safeguards are in place.

7. Data Security

We implement appropriate technical and organisational measures to protect your data, including:
– Secure servers and encrypted communications
– Access controls and staff training
– Regular data audits and breach response procedures

8. Automated Decision-Making

We do not use your data for automated decision-making or profiling.

9. Updates to This Policy

We may update this policy from time to time. The latest version will always be available on our website.

10. Contact Us

If you have any questions or concerns about this policy or your data, please contact:

Fighting Blindness
21 Hill Street, Dublin 1, D01 W1C5, Ireland
📧 Email: info@fightingblindness.ie
🌐 Website: https://www.fightingblindness.ie

Volunteer and Staff Data

We may collect personal data from volunteers and staff, including contact details, references, and relevant background information, for the purposes of recruitment, coordination, and safeguarding. This data is processed under legitimate interest and legal obligations.

Donor Information

When you make a donation or support our fundraising efforts, we may collect your name, contact details, and donation history. This helps us manage donations, issue receipts, and keep you informed about our impact. You can opt out of communications at any time.

Data Protection Contact

For any data protection queries, please contact our designated Data Protection Lead at info@fightingblindness.ie.

Data Inventory and Retention

We maintain a data inventory and apply retention schedules to ensure personal data is not held longer than necessary. Data is securely deleted or anonymised when no longer required.

Legitimate Interest

Where we rely on legitimate interest to process your data, we conduct a balancing test to ensure your rights are not overridden. You can request more information about this assessment.

Children’s Data

We do not knowingly collect personal data from children under 16 without parental consent. Where applicable, we ensure appropriate safeguards are in place.

Exercising Your Rights

To access, correct, or delete your data, please email info@fightingblindness.ie. We will respond within one month in accordance with GDPR.