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A novel gene therapy for X-linked retinitis pigmentosa (RP)
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AMD Peer Support Group
Application of next generation sequencing for the genetic characterisation of Irish retinal degeneration patients
Avril Daly
Best Disease
Blind Guys Chat Podcast
Braille Connect
Characterising the IRD population in Northern Ireland through an all-Ireland retinal degenerations partnership
Cilia-related inherited retinal dystrophy: uncovering fundamental disease mechanism and designing patient-oriented impact
Circadian clock may protect eyes from aging
Clinical & Genetic Maternal Study in Leber Hereditary Optic Neuropathy
Clinical Fellowships at Target 5000 clinics
Clinical Genetics Programme for Inherited Retinal Degenerations
Community Fundraising
Dublin City Half Marathon Raffle 2026.
Confirm a legacy pledge form
Contact Us
Could a drug used for treating alcoholism help revive vision?
Council Circle
Dance for All: Inclusive Creative Dance Workshops
Daniela Brohlburg
Darrin Morrissey
David Birch, PhD
Directions – Young Adult Peer Support Group
Do blind people recall speech better than sighted people?
Donate
Donate
Donate save copy
Donation Confirmation
Dr Adrian Dockery and Prof. Jane Farrar
Dr. Carmen Ayuso Garcia
Dr. Daniel C. Chung
Dr. Elise Héon
Dr. James O’Byrne
Dr. Jeff O’Callaghan
Dr. Joanne O’Dwyer
Dr. Juan Manuel Muñoz
Dr. Leah Byrne
Dr. Lucia Celkova
Dr. Madhuri Dandamudi – IRC Enterprise Partnership Scheme Postdoctoral Fellowship (SETU)
Dr. Nabin Paudel
Dr. Patrizia Colucci – IRC Enterprise Partnership Scheme Postgraduate Scholar (UCD)
Dr. Paul Boskind
Dr. Sarah Doyle
Dr. Sophia Millington-Ward
Dr. Tess McCann
Dr. Tiarnán Keenan, M.D., Ph.D.
Exploring the Potential of Gene Therapy to Treat Autosomal-dominant Retinal Disease in a Mouse Model
Fighting Blindness Award supports International Collaboration to Advance Vision Research
Fighting Blindness Awards support Irish Representation at ARVO 2024
Fighting Blindness funded scientists show that a compound found in the contraceptive pill may protect against retinal degeneration
Fighting Blindness Honours Emerging Retinal Researcher at Trinity Neuroscience Research Day
Fighting Blindness hosts a P.P.I Training event for both researchers and those affected by vision loss
Fighting Blindness hosts our first ever in-person V.I.P Network Coffee Morning!
Fighting Blindness member add-on: Friday, June 7th
Fighting Blindness member rate: Saturday, June 8th
Fighting Blindness published in Irish Pharmacy News Age-related Macular Degeneration (AMD) article
Fighting Blindness RIWC €110
Fighting Blindness-funded Target 5000 team wins Royal Academy of Medicine in Ireland award for Ophthalmology research paper
Fighting Blindness-funded Trinity researchers find promising gene therapy for the treatment of multiple eye diseases
Find Out More: Legacy Guide
First paediatric patient with Leber Congenital Amaurosis 10 (LCA10) dosed in clinical trial
Full list of confirmed speakers
Gene variant found enriched in Irish Stargardt disease patients
Genetics
Get involved
Become a member
Fundraise
Active Appeals
Corporate giving
Events
Categories
Locations
My Bookings
Tags
Impact of your donation
Online fundraising tips
Organise a virtual event
Private Members Draw
Shop
Glendalough Trail Run
Government Backs Groundbreaking Vision Research Led by Fighting Blindness and Trinity Scientists: Funding Boost Aims to Unlock New Treatments for Sight Loss
Grace Ruddin – IRC Enterprise Partnership Scheme Postgraduate Scholar (UCD)
Hearing and sight loss peer support group
Home
Horizons: Parents Support Group
How we can help
Advocacy
Access to therapies
Advocacy and access to therapies
Medicines approval and regulation in the EU
Medicines approval and reimbursement in Ireland
Orphan medicines
Patient involvement in medicines approval and reimbursement
Recent medicines assessments and approvals
Be your own advocate
Become an advocacy champion
Share your story
Collaborative advocacy
Eye care services
Accessing healthcare in another country
Eye care professionals
Hospital waiting lists
HSE National Clinical Programme for Ophthalmology
Medical social workers
Questions to ask your doctor
Screening programmes
What happens at your appointment?
Information and resources hub
Assistive technology and devices
Computer software
Household items
Low vision aids, magnifiers and Braille
Mobility aids
Smartphones, tablets and apps
Education
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Social welfare and entitlements
Sport and leisure
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Vision impairment and blindness
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European Reference Networks
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Rare diseases advocacy
What is a rare disease?
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Public and Patient Involvement (PPI) in Research and Advocacy
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Research news
Diabetic retinopathy video launched
Fighting Blindness invests in developing adaptive optics in Ireland
First Gene Therapy for Blindness Approved in Europe
Gene editing – what does this mean for inherited retinal degeneration?
Gene editing for retinal degenerations
Genetic counselling for inherited retinal degenerations
Ireland’s first stem cell tissue transplant eye operation
Ireland’s First Stem Cell Tissue Transplant Eye Operation
IRIS®II becomes third bionic retina approved in Europe
New gene discovery research funded by Fighting Blindness
New research project to be funded by Fighting Blindness in DIT
NightstaRx commences first Phase I/II gene therapy clinical trial for x-linked retinitis pigmentosa
Patient led research moves closer to the clinic
Positive step forward for retina gene therapy
QLT Inc. completes enrolment in natural history study for RP and LCA
Reinventing the eye exam with Artificial Intelligence
RNA Therapies for Inherited Retinal Diseases
Ronnie Whelan launches new AMD guide
RPE65 gene therapy update
Spotlight on…..Dr. Sarah Doyle and her research on SARM1
Spotlight on…..Genetic Counselling
Spotlight on…..Optogenetics
Stem cell treatment holds potential to improve sight in people with macular degeneration
UCD to lead new international research consortium to accelerate development of ophthalmic treatments
Using zebrafish models to understand inherited sight loss in childhood
Vision Science Summer Camps by Rebecca Ward, Researcher at UCD and Fighting Blindness-funded PhD
World Retina Day 2017
Research Strategys
Retina Network Ireland
RIWC24, hosted by Fighting Blindness
About RIWC24
RIWC24 Programme & Agenda
Speakers for RIWC24
Target 5000
About Target 5000
Frequently Asked Questions
Genetic Counselling
Genetic Testing
Target 5000 Team and Outputs
Enhancing and expanding the utility of Target 5000
The Target 5000 Journey
Support
Connections Coffee Afternoon
Insight Counselling Service
Counselling
Get in touch
Support Groups – Full List
Support Groups
Telephone counselling
Mindfulness group
Newly Diagnosed
Technology Exchange Club
Visionaries School of the Arts
Identification of drugs that can safely and effectively maintain visual function in models of inherited retinal degeneration
Inherited childhood sight loss: understanding visual cycle biology to develop treatments
International Day of Women and Girls in Science 2025
IRD COUNTS – the impact of inherited retinal degenerations
Irish participation at the International Scholars in Retinal Imaging Programme
Join
Join new
Listen/watch back to RIWC24, hosted by Fighting Blindness
Make a donation
Making a Will – FAQs
Manifesto 2020
Mark Cahill
Membership Confirmation
Mr. David Sanchez
Mr. Franz Badura
New study into Stargardt disease looks into the genetic chances of a child’s risk of developing low vision
News
ProQR announces clearance of Investigational New Drug (IND) to start clinical trial of an RNA-therapy in people with Usher Syndrome Type 2
Newsletter
Newsletter Sign Up
Novel approach found to genetic testing of Inherited Retinal Degenerations (IRDs)
Older Research News
ORBITAL
ORBITAL members awarded over €700,000 for developing novel treatment for Dry Eye Disease
Our funded researcher Prof. Campbell’s new equipment for studying degenerative retinal diseases
Panel español revela conocimientos de vanguardia sobre enfermedades hereditarias de la retina en RIWC24
Paris2Nice Charity Cycle
Participants required for one-on-one coaching on assistive technology
Pioneering advances for control of myopia in children – The MOSAIC Initiative
PPI in Research Workshop: Summary Report now available!
Previous Research Projects
Previous RNI Training and Workshops
Privacy Policy
Private Members Draw
Prof. Bart Leroy
Prof. Breandán Kennedy
Prof. Frans Cremers
Prof. Hélène Dollfus, M.D., Ph.D.
Prof. Jane Farrar
Prof. Julie Silvestri
Prof. Matthew Campbell
Prof. Oliver Blacque
Prof. Robin Ali
Prof. Sarah Doyle
Professor Breandán Kennedy
Professor David Keegan
Professor Frans Cremers
Professor Isabel Pinilla
Professor Isabelle Audo, M.D., Ph.D.
Professor Jane Farrar
Professor Jean Bennett
Professor Julie Silvestri
Professor Mark Pennesi, M.D., Ph.D.
Professor Matthew Campbell
Professor Oliver Blacque
Professor Sarah Doyle
ProgRET: Collaborating across Europe to advance retinal research
Register for RIWC24
Remember Us In Your Will
Research Ireland Enterprise Partnership Scheme Scholars
Retina 2022
Retina 2022 Public Engagement Day Agenda
Retina 2022 Speakers and Agenda
Retina 2022 Ticket Registration
Retina 2022 Venue Information
Retina 2022: Speakers Announcement
Retina International World Congress: Registration: Fighting Blindness members
RIWC Visa Information
RIWC24 Abstracts
RIWC24 Call for Abstracts: Deadline Extended
RIWC24 FAQ’s
RIWC24 Impact Report
RIWC24 Sponsors
RNI group
RNI News
Roots Gardening Group
Russell Wheeler
Save my sight, change my life: Fighting Blindness RetCam Appeal
Save the Date: Research with Impact – Grant Writing & Public Involvement Event!
Scientific Committee
Scientists pinpoint genetic target with promise for treating many forms of blindness
Shedding light into the molecular mechanisms on how the protein RAB28 is involved in inherited blindness
Shedding light on unexplained inherited retinal diseases in Ireland and the Netherlands
Silvia Cerolini
Sitemap
Speakers for the PPI Workshop funded by the HRB
Stargardt Peer Support Group
StarT: Innovative Research Training Network focusing on different aspects of Stargardt Disease
Success of the RIWC24 event at the 2024 Irish Healthcare Awards!
Suggested Wording for a Will
Support Group for Relatives and Friends
Test page aug 2025
The V.I.P. Network and Patient Involvement (PPI)
This Christmas, help keep a cure in our sights
Todd A. Durham, PhD
Travelling across Brazil for a cure for Leber congenital amaurosis 10 (LCA10)
Two-day admission Friday, June 7 and Saturday, June 8 (Early-bird)
Using tropical fish to develop Gene therapies: what can we learn?
Vision Research Snapshots – RNI Competition (now closed)
Watch/listen back: Research Webinar on Age-related Macular Degeneration (AMD)
William Woof, PhD.
Your voice matters!
Apply for Funding
Medical and Scientific Advisory Board
Our grant review process
Conditions of the retina
How the eye works
Human genetics
Inheritance Patterns
Tips for Good Eye Health
Patient education Programmes
Spectrum of sight loss
Your eye appointment
Newly diagnosed?
Eye Conditions
Caring for your sight
Assisting someone with sight loss
Self-care
Patient registry
A novel gene therapy for X-linked retinitis pigmentosa (RP)
About Retina Network Ireland
About RIWC24
About us
Annual Reports
FAQs
Governance
Data Protection
Guiding Principles
Where does your money go?
Our history
Our vision
Structure
Affiliations
Board of Directors
Our team
Website accessibility
Accommodation
AMD Peer Support Group
Application of next generation sequencing for the genetic characterisation of Irish retinal degeneration patients
Avril Daly
Best Disease
Blind Guys Chat Podcast
Braille Connect
Characterising the IRD population in Northern Ireland through an all-Ireland retinal degenerations partnership
Cilia-related inherited retinal dystrophy: uncovering fundamental disease mechanism and designing patient-oriented impact
Circadian clock may protect eyes from aging
Clinical & Genetic Maternal Study in Leber Hereditary Optic Neuropathy
Clinical Fellowships at Target 5000 clinics
Clinical Genetics Programme for Inherited Retinal Degenerations
Community Fundraising
Dublin City Half Marathon Raffle 2026.
Confirm a legacy pledge form
Contact Us
Could a drug used for treating alcoholism help revive vision?
Council Circle
Dance for All: Inclusive Creative Dance Workshops
Daniela Brohlburg
Darrin Morrissey
David Birch, PhD
Directions – Young Adult Peer Support Group
Do blind people recall speech better than sighted people?
Donate
Donate
Donate save copy
Donation Confirmation
Dr Adrian Dockery and Prof. Jane Farrar
Dr. Carmen Ayuso Garcia
Dr. Daniel C. Chung
Dr. Elise Héon
Dr. James O’Byrne
Dr. Jeff O’Callaghan
Dr. Joanne O’Dwyer
Dr. Juan Manuel Muñoz
Dr. Leah Byrne
Dr. Lucia Celkova
Dr. Madhuri Dandamudi – IRC Enterprise Partnership Scheme Postdoctoral Fellowship (SETU)
Dr. Nabin Paudel
Dr. Patrizia Colucci – IRC Enterprise Partnership Scheme Postgraduate Scholar (UCD)
Dr. Paul Boskind
Dr. Sarah Doyle
Dr. Sophia Millington-Ward
Dr. Tess McCann
Dr. Tiarnán Keenan, M.D., Ph.D.
Exploring the Potential of Gene Therapy to Treat Autosomal-dominant Retinal Disease in a Mouse Model
Fighting Blindness Award supports International Collaboration to Advance Vision Research
Fighting Blindness Awards support Irish Representation at ARVO 2024
Fighting Blindness funded scientists show that a compound found in the contraceptive pill may protect against retinal degeneration
Fighting Blindness Honours Emerging Retinal Researcher at Trinity Neuroscience Research Day
Fighting Blindness hosts a P.P.I Training event for both researchers and those affected by vision loss
Fighting Blindness hosts our first ever in-person V.I.P Network Coffee Morning!
Fighting Blindness member add-on: Friday, June 7th
Fighting Blindness member rate: Saturday, June 8th
Fighting Blindness published in Irish Pharmacy News Age-related Macular Degeneration (AMD) article
Fighting Blindness RIWC €110
Fighting Blindness-funded Target 5000 team wins Royal Academy of Medicine in Ireland award for Ophthalmology research paper
Fighting Blindness-funded Trinity researchers find promising gene therapy for the treatment of multiple eye diseases
Find Out More: Legacy Guide
First paediatric patient with Leber Congenital Amaurosis 10 (LCA10) dosed in clinical trial
Full list of confirmed speakers
Gene variant found enriched in Irish Stargardt disease patients
Genetics
Get involved
Become a member
Fundraise
Active Appeals
Corporate giving
Events
Categories
Locations
My Bookings
Tags
Impact of your donation
Online fundraising tips
Organise a virtual event
Private Members Draw
Shop
Glendalough Trail Run
Government Backs Groundbreaking Vision Research Led by Fighting Blindness and Trinity Scientists: Funding Boost Aims to Unlock New Treatments for Sight Loss
Grace Ruddin – IRC Enterprise Partnership Scheme Postgraduate Scholar (UCD)
Hearing and sight loss peer support group
Home
Horizons: Parents Support Group
How we can help
Advocacy
Access to therapies
Advocacy and access to therapies
Medicines approval and regulation in the EU
Medicines approval and reimbursement in Ireland
Orphan medicines
Patient involvement in medicines approval and reimbursement
Recent medicines assessments and approvals
Be your own advocate
Become an advocacy champion
Share your story
Collaborative advocacy
Eye care services
Accessing healthcare in another country
Eye care professionals
Hospital waiting lists
HSE National Clinical Programme for Ophthalmology
Medical social workers
Questions to ask your doctor
Screening programmes
What happens at your appointment?
Information and resources hub
Assistive technology and devices
Computer software
Household items
Low vision aids, magnifiers and Braille
Mobility aids
Smartphones, tablets and apps
Education
Employment
Social welfare and entitlements
Sport and leisure
Support services and organisations
Vision impairment and blindness
Rare diseases
European Reference Networks
National Rare Disease Plan
National Rare Diseases Office
Rare Disease Day
Rare diseases advocacy
What is a rare disease?
Research
Clinical Trials
Meet your researchers
Public and Patient Involvement (PPI) in Research and Advocacy
PPI for researchers
PPI toolkit
Requesting Support
Useful Resources
Research Explained
The Research Cycle
Research news
Diabetic retinopathy video launched
Fighting Blindness invests in developing adaptive optics in Ireland
First Gene Therapy for Blindness Approved in Europe
Gene editing – what does this mean for inherited retinal degeneration?
Gene editing for retinal degenerations
Genetic counselling for inherited retinal degenerations
Ireland’s first stem cell tissue transplant eye operation
Ireland’s First Stem Cell Tissue Transplant Eye Operation
IRIS®II becomes third bionic retina approved in Europe
New gene discovery research funded by Fighting Blindness
New research project to be funded by Fighting Blindness in DIT
NightstaRx commences first Phase I/II gene therapy clinical trial for x-linked retinitis pigmentosa
Patient led research moves closer to the clinic
Positive step forward for retina gene therapy
QLT Inc. completes enrolment in natural history study for RP and LCA
Reinventing the eye exam with Artificial Intelligence
RNA Therapies for Inherited Retinal Diseases
Ronnie Whelan launches new AMD guide
RPE65 gene therapy update
Spotlight on…..Dr. Sarah Doyle and her research on SARM1
Spotlight on…..Genetic Counselling
Spotlight on…..Optogenetics
Stem cell treatment holds potential to improve sight in people with macular degeneration
UCD to lead new international research consortium to accelerate development of ophthalmic treatments
Using zebrafish models to understand inherited sight loss in childhood
Vision Science Summer Camps by Rebecca Ward, Researcher at UCD and Fighting Blindness-funded PhD
World Retina Day 2017
Research Strategys
Retina Network Ireland
RIWC24, hosted by Fighting Blindness
About RIWC24
RIWC24 Programme & Agenda
Speakers for RIWC24
Target 5000
About Target 5000
Frequently Asked Questions
Genetic Counselling
Genetic Testing
Target 5000 Team and Outputs
Enhancing and expanding the utility of Target 5000
The Target 5000 Journey
Support
Connections Coffee Afternoon
Insight Counselling Service
Counselling
Get in touch
Support Groups – Full List
Support Groups
Telephone counselling
Mindfulness group
Newly Diagnosed
Technology Exchange Club
Visionaries School of the Arts
Identification of drugs that can safely and effectively maintain visual function in models of inherited retinal degeneration
Inherited childhood sight loss: understanding visual cycle biology to develop treatments
International Day of Women and Girls in Science 2025
IRD COUNTS – the impact of inherited retinal degenerations
Irish participation at the International Scholars in Retinal Imaging Programme
Join
Join new
Listen/watch back to RIWC24, hosted by Fighting Blindness
Make a donation
Making a Will – FAQs
Manifesto 2020
Mark Cahill
Membership Confirmation
Mr. David Sanchez
Mr. Franz Badura
New study into Stargardt disease looks into the genetic chances of a child’s risk of developing low vision
News
ProQR announces clearance of Investigational New Drug (IND) to start clinical trial of an RNA-therapy in people with Usher Syndrome Type 2
Newsletter
Newsletter Sign Up
Novel approach found to genetic testing of Inherited Retinal Degenerations (IRDs)
Older Research News
ORBITAL
ORBITAL members awarded over €700,000 for developing novel treatment for Dry Eye Disease
Our funded researcher Prof. Campbell’s new equipment for studying degenerative retinal diseases
Panel español revela conocimientos de vanguardia sobre enfermedades hereditarias de la retina en RIWC24
Paris2Nice Charity Cycle
Participants required for one-on-one coaching on assistive technology
Pioneering advances for control of myopia in children – The MOSAIC Initiative
PPI in Research Workshop: Summary Report now available!
Previous Research Projects
Previous RNI Training and Workshops
Privacy Policy
Private Members Draw
Prof. Bart Leroy
Prof. Breandán Kennedy
Prof. Frans Cremers
Prof. Hélène Dollfus, M.D., Ph.D.
Prof. Jane Farrar
Prof. Julie Silvestri
Prof. Matthew Campbell
Prof. Oliver Blacque
Prof. Robin Ali
Prof. Sarah Doyle
Professor Breandán Kennedy
Professor David Keegan
Professor Frans Cremers
Professor Isabel Pinilla
Professor Isabelle Audo, M.D., Ph.D.
Professor Jane Farrar
Professor Jean Bennett
Professor Julie Silvestri
Professor Mark Pennesi, M.D., Ph.D.
Professor Matthew Campbell
Professor Oliver Blacque
Professor Sarah Doyle
ProgRET: Collaborating across Europe to advance retinal research
Register for RIWC24
Remember Us In Your Will
Research Ireland Enterprise Partnership Scheme Scholars
Retina 2022
Retina 2022 Public Engagement Day Agenda
Retina 2022 Speakers and Agenda
Retina 2022 Ticket Registration
Retina 2022 Venue Information
Retina 2022: Speakers Announcement
Retina International World Congress: Registration: Fighting Blindness members
RIWC Visa Information
RIWC24 Abstracts
RIWC24 Call for Abstracts: Deadline Extended
RIWC24 FAQ’s
RIWC24 Impact Report
RIWC24 Sponsors
RNI group
RNI News
Roots Gardening Group
Russell Wheeler
Save my sight, change my life: Fighting Blindness RetCam Appeal
Save the Date: Research with Impact – Grant Writing & Public Involvement Event!
Scientific Committee
Scientists pinpoint genetic target with promise for treating many forms of blindness
Shedding light into the molecular mechanisms on how the protein RAB28 is involved in inherited blindness
Shedding light on unexplained inherited retinal diseases in Ireland and the Netherlands
Silvia Cerolini
Sitemap
Speakers for the PPI Workshop funded by the HRB
Stargardt Peer Support Group
StarT: Innovative Research Training Network focusing on different aspects of Stargardt Disease
Success of the RIWC24 event at the 2024 Irish Healthcare Awards!
Suggested Wording for a Will
Support Group for Relatives and Friends
Test page aug 2025
The V.I.P. Network and Patient Involvement (PPI)
This Christmas, help keep a cure in our sights
Todd A. Durham, PhD
Travelling across Brazil for a cure for Leber congenital amaurosis 10 (LCA10)
Two-day admission Friday, June 7 and Saturday, June 8 (Early-bird)
Using tropical fish to develop Gene therapies: what can we learn?
Vision Research Snapshots – RNI Competition (now closed)
Watch/listen back: Research Webinar on Age-related Macular Degeneration (AMD)
William Woof, PhD.
Your voice matters!
Apply for Funding
Medical and Scientific Advisory Board
Our grant review process
Conditions of the retina
How the eye works
Human genetics
Inheritance Patterns
Tips for Good Eye Health
Patient education Programmes
Spectrum of sight loss
Your eye appointment
Newly diagnosed?
Eye Conditions
Caring for your sight
Assisting someone with sight loss
Self-care
Patient registry